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Patient 2 Patient Support & Understanding
Check out the podcast version of blog posts
Live into It


To Travel or Not To Travel?
The thought of travel can be overwhelming for Ataxians. I talk about my experience travelling to Barcelona.
Dec 10, 20248 min read


"The label doesn't matter. There's no cure."
When a doctor implies that it doesn't matter what ataxia you have because there is no cure violates your right to be fully informed.
Sep 8, 20246 min read


Ataxia and Anxiety - Part I
Anxiety can fuel ataxia symptoms. This is part one of a three part series examining this relationship.
Jul 1, 20246 min read


Our Disease. Our Symptoms.
New research points toward the need for multi-dimensional clinical assessment practices of ataxia.
May 1, 20245 min read


Maybe the One Beneficial Constant in an Ever-progressing Disease
Physiotherapists could provide Ataxians with a therapeutic service well beyond exercise.
Mar 30, 20246 min read


Spaces, Lights, and Ataxia
Get Mike and I outside or in a large building space then we wobble, and are uncoordinated and clumsy.
Mar 18, 20246 min read


Navigating the Wheelchair Maze
Walker, manual wheelchair, scooter? Your mobility device choice will reflect the person you are.
Feb 29, 20247 min read


You've Got to Love It
25 personal reasons I love ataxia.
Feb 19, 20244 min read
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