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Patient 2 Patient Support & Understanding
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Live into It


"The label doesn't matter. There's no cure."
When a doctor implies that it doesn't matter what ataxia you have because there is no cure violates your right to be fully informed.
Sep 8, 20246 min read


Ataxia and Anxiety - Part I
Anxiety can fuel ataxia symptoms. This is part one of a three part series examining this relationship.
Jul 1, 20246 min read


Our Disease. Our Symptoms.
New research points toward the need for multi-dimensional clinical assessment practices of ataxia.
May 1, 20245 min read


Maybe the One Beneficial Constant in an Ever-progressing Disease
Physiotherapists could provide Ataxians with a therapeutic service well beyond exercise.
Mar 30, 20246 min read


Spaces, Lights, and Ataxia
Get Mike and I outside or in a large building space then we wobble, and are uncoordinated and clumsy.
Mar 18, 20246 min read


Navigating the Wheelchair Maze
Walker, manual wheelchair, scooter? Your mobility device choice will reflect the person you are.
Feb 29, 20247 min read


Creating an Accessible Bathroom
Changing an outdated, dangerous bathroom into a contemporary, accessible, safe space.
Feb 20, 20246 min read


You've Got to Love It
25 personal reasons I love ataxia.
Feb 19, 20244 min read


My Story
A brief summary of my learning of my ataxia diagnosis
Feb 15, 20246 min read


I’m Still Here
I attempt to explain my absence and share how confusing neuro disorders can be.
Jul 2, 20235 min read


I. The Puzzling Progression of MSA
Part I: Recognizable Progressions These past three weeks have been emotionally more challenging for me. No doubt, my own sense of systems...
Mar 31, 20233 min read


II. The Puzzling Progression of MSA
Part 2 of an exploration into the research-based progression of MSA.
Mar 31, 20233 min read


The Power of a Fist Bump
This morning I was at the gym for my regular workout. Getting there was not easy, to be honest. Today seems to be one of those days that...
Mar 27, 20233 min read


Do you see what I see?
I thought I would develop a primer for myself and any others who are feeling visually afflicted. How does MSA affect vision?
Feb 25, 20234 min read


Dying with Dignity
Warning: This posting addresses the topic of medical assistance in dying (MAID) as a respectful and caring approach to the end of life....
Feb 18, 20233 min read


Being On Guard is Exhausting!
Are there times in the day that you actually relax all your muscles and release the subtle, yet ever present physical tension in your...
Feb 10, 20234 min read


Living into a disease that takes lives. Hmmm.
Multiple System Atrophy, or MSA, is a rare complex neuro-degenerative disorder that affects around three people in one hundred...
Feb 9, 20233 min read
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