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Patient 2 Patient Support & Understanding
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Live into It


"The label doesn't matter. There's no cure."
When a doctor implies that it doesn't matter what ataxia you have because there is no cure violates your right to be fully informed.
Sep 8, 20246 min read


Our Disease. Our Symptoms.
New research points toward the need for multi-dimensional clinical assessment practices of ataxia.
May 1, 20245 min read


Spaces, Lights, and Ataxia
Get Mike and I outside or in a large building space then we wobble, and are uncoordinated and clumsy.
Mar 18, 20246 min read


My Story
A brief summary of my learning of my ataxia diagnosis
Feb 15, 20246 min read


I’m Still Here
I attempt to explain my absence and share how confusing neuro disorders can be.
Jul 2, 20235 min read


II. The Puzzling Progression of MSA
Part 2 of an exploration into the research-based progression of MSA.
Mar 31, 20233 min read


Do you see what I see?
I thought I would develop a primer for myself and any others who are feeling visually afflicted. How does MSA affect vision?
Feb 25, 20234 min read


Flying Dutchman Syndrome
I hope you have seen any one of the Pirates of the Caribbean (Disney) movies. It will help with the metaphor I am using in this post. ...
Feb 13, 20233 min read
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