When a doctor implies that it doesn't matter what ataxia you have because there is no cure violates your right to be fully informed.

New research points toward the need for multi-dimensional clinical assessment practices of ataxia.

Get Mike and I outside or in a large building space then we wobble, and are uncoordinated and clumsy.

Changing an outdated, dangerous bathroom into a contemporary, accessible, safe space.

A brief summary of my learning of my ataxia diagnosis

Part I: Recognizable Progressions These past three weeks have been emotionally more challenging for me. No doubt, my own sense of systems...

Part 2 of an exploration into the research-based progression of MSA.

This morning I was at the gym for my regular workout. Getting there was not easy, to be honest. Today seems to be one of those days that...

I thought I would develop a primer for myself and any others who are feeling visually afflicted. How does MSA affect vision?

Warning: This posting addresses the topic of medical assistance in dying (MAID) as a respectful and caring approach to the end of life....

Are there times in the day that you actually relax all your muscles and release the subtle, yet ever present physical tension in your...

Multiple System Atrophy, or MSA, is a rare complex neuro-degenerative disorder that affects around three people in one hundred...